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"Where does my NHS patient data go?

This work is amazing. Read Jess Morley’s thread (or the Lancet paper) for a breakdown of the issues.

And check out this image — I’ve searched my whole career for something this comprehensive and yet simple.
#privacy #NHSdata #secondaryUses

x.com/jessrmorley/..."

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  "Infographic: where does my patient data go? 1. Data is routinely recorded as part of the medical record. 2. Electronic systems enable the extraction of patient data as datasets. 3. Using these systems, data is extracted and stored by different types of organisations. 4. Data extractions may distribute datasets to other organisations for secondary uses such as research. I’m sorry, there is loads more detail under those headings — I just couldn’t fit it all in."

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createdAt:

"2023-09-27T17:27:06.661Z"